(review here), a novel told from the perspective of a young teenage girl who has cerebral palsy. That wonderful book gives insight into the life of this girl and any other individuals who have difficulty communicating due to physical disabilities, and the frustrations they experience when their mind can't connect with the minds of others.An Amazon.com review of Out of My Mind referred to another novel with a similar theme, William Horwood's Skallagrigg
. Following the lives of Arthur and Esther, who both have C.P., Horwood delves into not only the communication challenge, but the culture of the disabled and the changing role of institutionalization in the 20th century. Arthur, in the early part of the 20th century, is institutionalized as a boy. He begins to tell stories of the Skallagrigg to his friends, and the legends grow, passed along from one institution to another. Esther, in the latter part of the century, hears bits and pieces of these stories, begins to compile them, and incorporates them into a video game which becomes a world-wide hit. Her whole life turns into a quest to find the Skallagrigg.Without getting too much into or giving away the story, several elements are worth noting. First, the system of institutionalization of the disabled in England. Arthur, institutionalized most of his life, suffered terrible abuse by those charged with caring for him. With no means to communicate, and inadequate supervision, the abuse continues for years. Although not the main purpose of the book, Horwood's depiction of the institutions and the changes and reforms over the course of the story make me glad for more humane and enlightened treatment of others.
Second, Horwood describes a subculture of the disabled that I never thought about. With limited ability to communicate with others, people with C.P. communicate with a combination of speaking (as they are able), gestures, sounds, and eye movements. I love the way the characters manage to communicate on a different plane from the rest of us, and create a unique community and relationships that others are only dimly aware of, if at all.
Finally, Horwood traces the development of assistive technology for disabled persons. Esther's father, a high-tech executive who got into the field early on, directs the resources of his computer company to develop specialized keyboards and devices to help Esther and others communicate like never before. Of course we all think of the brilliant Stephen Hawking and shudder to think of how different his life would have been had he been born a few years earlier. But even non-genius but perfectly intelligent people benefit from the efforts of the non-fiction counterparts of Esther's dad. Like Melody in Out of My Mind, Esther's life is completely changed by the simple ability to type.
Besides being a story that brings insight into the life experiences of people with cerebral palsy and the improvements that have come in treatment and communication, Skallagrigg is a thoroughly enjoyable story of a young woman's quest. It doesn't pack the emotional punch of Out of My Mind, primarily because it's a densely told, intricately plotted novel of over 700 pages, versus OOMM's 300 pages, written for a younger readers. But with the additional length comes a more satisfying and substantial read.
I highly recommend Skallagrigg for anyone who comes into contact with people with cerebral palsy or other disabilities. It's guaranteed to broaden your view of people with disabilities. Besides that, though, it is a beautiful story, beautifully written.
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First published in 1987 in the UK (I'm not sure if it was ever published in the U.S.), Skallagrigg was not the easiest book to find. I got it through ILL at the FW library. Because I want to read it again and share it, I have ordered a copy from Amazon. If you are reading this and would like to read the book, let me know and I will lend it to you.
Also, for an abbreviated but still decent portrayal, the BBC produced a movie version in 1994. You can watch it on youtube.
Paul's review of my novel picks up on three things other reviewers rarely have, though these issues are now common currency: institutionalization, abuse in what used to be called 'sub normality hospitals' in the UK and technology for special needs. These were all campaigning issues back in the early 1980's when Skallagrigg was written and published. I'm grateful to Paul for spotlighting them again because anyone who works in this field will know that eternal vigilance are the watchwords. Readers may like to know that one of the sources of inspiration and ideas for Skallagrigg was Rosemary Collin's book 'Annie's Coming Out' published in 1980 and available in used copies from www.abebooks.com. It's about a girl/woman like my heroine who finds a way to get out of the institution and all the more compelling for being a true story. I highly reccommend it. Readers in the USA may also like to know that I re-visited the issue of mental institutions in a pseudonymous novel titled 'Dark Hearts of Chicago' written in collaboration with an historian and with 'James Conan' as the author (not sure which half I am!!) which plots a story around the Insane Asylum in that great city circe 1893. It was interesting that exactly the same kind of abuses were going on then as later with respect to the mentally ill and the physically disadvantaged on both sides of the Atlantic. Thanks to Paul for his review and to anyone who goes the extra mile and engages with people. which is to say human beings, who may not find it easy to initiate the contact but may want to do so. William.
ReplyDeleteMr. Horwood, I'm honored that you've added your comments to my review. Thanks for your kind thoughts and for the recommended reading. I didn't mention my daughter in the review. She has an unidentified genetic disorder, some of the symptoms of which are limited mobility and an inability to speak. We have struggled with finding the right technology to help her find her voice, and, although she is not in an institution, have struggled with finding the right place for her in the schools. Like Esther, we believe there is much more going on in her beautiful mind than we know, and pray that we will find the right tools and setting for her development. If you're interested, my wife blogs about some of these experiences at http://ourordinaryday.wordpress.com/. Again, thanks for the note, and especially for the inspiring book, still powerful after 24 years!
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